Rare Diseases

Also need SUPPORT

This is Logan.

He has a rare genetic mutation that medical science isn’t funding.

And it happens more than you think.

Help us change that.

About Logan

Logan is 7-years-old. He has a mutation of the PRMT9 gene. He is non-communicative; hits himself in the head to the point of seizures; and has grinded his teeth down to the gumline.

He may live like a 1-year-old for the rest of his life. And his health condition is getting worse.

Here's the thing...

Logan isn't alone.

There are countless families who have children with genetic mutations that medical science aren't funding because they are so rare.

And much like our family, they are left to fend for themselves and find their own solutions.

There has to be a better way

We believe we can forge a path for children with rare diseases.

Our family wants to start a movement to help all families who face the same challenge, but first we need to bring people together:

Families with children who suffer from rare genetic diseases

Research Labs who are eager to flex their scientific muscles

Philanthropists who understand the pain families face everyday

Clinicians who are tired of turning away children

Join Us

We would love to hear from you.

Either join the mailing list or contact us directly at prmt9@loo.ca