PRMT9 is the name of a gene — one tiny part of the body’s instruction manual — that helps the brain grow and function properly.

In most people, this gene works silently in the background, helping brain cells build connections and communicate.

But for children like Logan, a rare change (called a mutation, in this case the G189R variant) in this gene causes the brain to develop differently.

This can lead to big challenges:

• Significant delays in speech and learning

• Difficulty communicating or socializing

• Repetitive behaviors like head banging or hand flapping

• And in some cases, constant frustration, crying, or even pain — without a way to explain it

Because PRMT9 mutation is so rare, very little is known about it. Logan is one of only a few children in the world diagnosed with this condition. And right now, there is no treatment, no cure, and no roadmap.

That’s why we’re building the first-ever PRMT9 registry — to connect families, collect data, and push research forward.

Every family we find, every symptom we record, every dollar we raise — it all brings us closer to answers.

We believe that with the right support, Logan — and kids like him — can live better, fuller lives. But we need your help to get there.